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If patients saw a significant amount of weight loss and saw their joint pains improve, or their sleep apnea improve [because of it], all of those comorbidities will get worse as the weight comes back, she says

Additionally, if urination is accompanied by lower extremity swelling, significant changes in urine color (very dark or tea-colored), persistent foamy urine (which may suggest protein in the urine requiring testing), or decreased urine output despite fluid intake, kidney function should be evaluated

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While three forms of cystinosis have been described, the disorder displays a continuum of clinical severity inversely related to the amount of residual cystine-transporting activity

It provides no dosing, administration, clinical, veterinary, or human-use guidance

They're able to have their joints replaced, their kidney transplants, their confidence